Name: Alan Cutler
Describe your motivation for getting involved with the LHON Society.
We have several members of our family who have LHON including our daughter, Steph, a fellow trustee, who lost her sight in 2004.
What are your hopes for the LHON Society?
The Society has two broad aims: to offer support for those affected by the disease, especially those, and their loved ones, newly affected; and to support research into finding a cure. For me, whilst being Steph’s father, I also have four young grandchildren so my main hope is that we can contribute to those medical professionals seeking some medical intervention that could reduce the effect of this horrible condition.
What is your guilty pleasure?
I have to admit that I am not particularly guilty about any of my pleasures! However, if pushed, perhaps it would be my wife’s homemade scones.
What three words best describe you?
Enthusiastic, driven, and family-oriented