Rob Driscoll

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Name: Robert (Rob) Driscoll


Describe your motivation for getting involved with the LHON Society:


To support the rehabilitation of others who lose sight due to LHON.


What are your hopes for the LHON Society?


To become a UK support network and information hub for those; with an interest in LHON, affected by LHON and carrying LHON.

I have a particular interest in activities relating to emotional support and development of those who are newly affected. My message to someone recently diagnosed would be, you are capable of more than you ever imagined – the only thing that will hold you back is you.


What is your guilty pleasure?


Adrenaline based adventures.


What three words best describe you?


Laconic, phlegmatic and tenacious