Join the buddy scheme

LHON is a rare disease, which means it is easy to feel alone. But you are not alone. That's why we have set up the LHON buddy system.

Are you recently diagnosed with LHON and wanting to speak to someone already living with LHON?

Do you want to speak to another carrier or another parent?

Do you want to help someone who has been recently diagnosed?

If you would like to find a LHON buddy, please fill out the form below and we will try to find someone who would be a suitable buddy for you.

Personal Details
About you

Could you briefly describe what you would be looking for in a LHON buddy (e.g., someone else affected by LHON who I ask for advice and learn from)?