Join the community

By joining the LHON Society you can assist us in our work supporting those affected, raising awareness and helping facilitate research into treatments. As a member, your views and opinions can contribute towards improving the lives of the LHON community. A formal membership provides the society with authority and credibility, enabling us to represent our member's interests in broader debates with government and health care providers.

LHON Society membership is free and open to all but please note we are a UK based charity, and all communication will therefore be in English. Our intention is to work alongside other LHON patient support groups worldwide and not to replace any local organisations in other countries.We will ask you to provide us with some relevant information on the application. We use your information to process and administer your society membership and to send you relevant news and information that may be of interest or provide appropriate support when requested. We may also use the information to improve our website, newsletter and other services we provide. Please take some time to read our Privacy Policy to see how and why we use your personal data.We need to send you a confirmation email when you subscribe to the membership — if you don't see the email from info@lhonsociety.org, please check that your email server hasn't sent it to your spam or junk folder.

Personal Details

Title:

MRS

MISS

OTHER

First Name:

Last Name:

Email Address:

Address:

Date of Birth

Date

Phone Number:

Sex / Gender

WHAT SEX WERE YOU ASSIGNED AT BIRTH?

Male

Female

Prefer not to say

IS THE GENDER YOU IDENTIFY WITH THE SAME AS YOUR SEX REGISTERED AT BIRTH?

Yes

Prefer not to say

If 'NO' please specify your identity

Ethnicity

WHAT IS YOUR ETHNIC GROUP?

(Note: We ask the question in this way to be consistent with the national consensus.)

ASIAN OR ASIAN BRITISH

BLACK, AFRICAN, BLACK BRITISH OR CARIBBEAN

MIXED OR MULTIPLE ETHNIC GROUPS

WHITE

ANOTHER ETHNIC GROUP

PREFER NOT TO SAY

LHON Mutation:

11778

14484

3460

Unknown

Not Applicable

If your mutation is not listed, please enter here:

Would you be willing to help us with our work?

Yes

Not at this time, but maybe in the future

How you can help

Please let us know how you could help:

My perspective:

Affected

Carrier

Parent or guardian of someone affected

Family of someone affected

Health Professional

Researcher

Other

Reason for joining

Is there anything else you think we should know?

Are you happy to receive newsletters or emails?

Yes