Join the community

By joining the LHON Society you can assist us in our work supporting those affected, raising awareness and helping facilitate research into treatments. As a member, your views and opinions can contribute towards improving the lives of the LHON community. A formal membership provides the society with authority and credibility, enabling us to represent our member's interests in broader debates with government and health care providers.

LHON Society membership is free and open to all but please note we are a UK based charity, and all communication will therefore be in English. Our intention is to work alongside other LHON patient support groups worldwide and not to replace any local organisations in other countries.We will ask you to provide us with some relevant information on the application. We use your information to process and administer your society membership and to send you relevant news and information that may be of interest or provide appropriate support when requested. We may also use the information to improve our website, newsletter and other services we provide. Please take some time to read our Privacy Policy to see how and why we use your personal data.We need to send you a confirmation email when you subscribe to the membership — if you don't see the email from info@lhonsociety.org, please check that your email server hasn't sent it to your spam or junk folder.

Personal Details
Title: *
Sex / Gender
WHAT SEX WERE YOU ASSIGNED AT BIRTH?
IS THE GENDER YOU IDENTIFY WITH THE SAME AS YOUR SEX REGISTERED AT BIRTH?
Ethnicity
WHAT IS YOUR ETHNIC GROUP?

(Note: We ask the question in this way to be consistent with the national consensus.)

LHON Mutation:
LHON Mutation:
Would you be willing to help us with our work?
How you can help
My perspective:
Are you happy to receive newsletters or emails?