As LHON is a rare disease, hearing stories from others who have been affected can help people feel less alone. It can also help people learn more about the condition and how it can affect lives.
If you are affected by LHON, we would love to hear from you. If you want to share your story with us, please complete the form below. When you email, please include your name and let us know if you are happy for your story to be shared on our website.
You don't need to be affected with vision loss to share your story with us — we want to hear from anyone touched by LHON, whether you are personally affected, a carrier, a parent, or a friend.