There are many other organisations out there that may be able to provide information and support. Details of some of these are listed below.
Fighting Blindness
An Irish patient-led organisation funding and enabling
world-leading research into treatments and cures for blindness. It also
provides a professional counselling service for people and families affected by
sight loss, and is extremely active in the area of patient advocacy and
empowerment. Fighting Blindness is involved with rare, genetic, age-related,
and degenerative conditions that cause sight loss, including Leber Hereditary
Optic Neuropathy (LHON).
Visit www.FightingBlindness.ie for more information.
Visibility Scotland
Visibility Scotland provides support to children and adults who are blind or partially sighted and live in Scotland. They also support families and carers of anyone affected by sight loss.
Visit visibilityscotland.org.uk/ for more information.
RNIB
The Royal National Institute of Blind People (RNIB) is one of
the UK’s leading sight loss charities and the largest community of blind and
partially sighted people. They can offer help and support for blind and
partially sighted people, including practical and emotional support,
campaigning for change, reading services and the products we offer in our
online shop.
Visit www.rnib.org.uk/ for more information.
VICTA
VICTA is a national charity that provides support to children and young adults from 0 to 29 years old who are blind or partially sighted, as well as their families.
Visit www.victa.org.uk/ for more information.
International LHON communities
There are other LHON organisations around the world, for example in:
- Canada: lhoncanada.ca/
- US: www.lhon.org/