Upcoming events
LHON Society Patient and Family Day 2024
This will be a fantastic day bringing together the UK LHON community. We will have presentations on the latest in research and treatments, people sharing their stories of living with LHOn and the latest in assisstive technology on display. We provide food and refreshments throughout the day.
When; 13th July 2024
Where; Hyatt Regency Hotel Manchester
Time; all day, starting at 930
Get your ticket here;
https://www.tickettailor.com/events/lhonsociety/1159367
LHON Society Regional. events 2023. If you want to come please just message us at the society or via our Facebook page.
Cambridge, Saturday 24th June, 1pm @ Chill2 Cafe
Manchester, Saturday 1st July, 1pm @ Cosy Club restaurant
Cardiff, Saturday 11th November, 1pm @ Cardiff University
We have a grant from the National Lottery Community Fund to help us pay for these events this year.
Past Events
Patient & Family Engagement Event 8th October 2022
Event overview video:
Ben Merrick - 'Don't Let Anyone Tell You That You Can't Do That!
Andrew Mumford - We Can Make A Difference & Our Voices Should Be Heard
Stuart Hann - The Blind Chocolatier
Benson Chen - Overview Of Qualitative Research Projects For LHON
Patrick Yu Wai Man - Update On Gene Therapy & Treatment Strategies For LHON
James Ferguson - Why Communication Matters; What We Say, Don't Say & What We Think We Know
LHON society 2019 conference
Video presentations:
Gensight Gene Therapy and Research Update - Dr Patrick Yu Wai Man
Waymap - Tim Murdoch
Mitochondrial Disease in a Nutshell - Prof Marcela Votruba
PSP Discussion
LHON - Technology Software Panel Discussion