Upcoming events
LHON Society Regional. events. If you want to come please just message us at the society or via our Facebook page.
Cambridge, Saturday 24th June, 1pm @ Chill2 Cafe
Manchester, Saturday 1st July, 1pm @ Cosy Club restaurant
Cardiff, Saturday 11th November, 1pm @ Cardiff University
We have a grant from eh National Lottery Community Fund to help us pay for these events this year.
Past Events
Patient & Family Engagement Event 8th October 2022
Event overview video:
Ben Merrick - 'Don't Let Anyone Tell You That You Can't Do That!
Andrew Mumford - We Can Make A Difference & Our Voices Should Be Heard
Stuart Hann - The Blind Chocolatier
Benson Chen - Overview Of Qualitative Research Projects For LHON
Patrick Yu Wai Man - Update On Gene Therapy & Treatment Strategies For LHON
James Ferguson - Why Communication Matters; What We Say, Don't Say & What We Think We Know
LHON society 2019 conference
Video presentations:
Gensight Gene Therapy and Research Update - Dr Patrick Yu Wai Man
Waymap - Tim Murdoch
Mitochondrial Disease in a Nutshell - Prof Marcela Votruba
PSP Discussion
LHON - Technology Software Panel Discussion