Events and activities

3 people standing on a hill looking at the view

Upcoming events

The LHON society is pleased to announce that we are hosting a Patient & Family Engagement Event on Saturday 8th October 2022. Registration for the event is now closed.

The event will be held at Conference Aston, Conference Centre and Hotel, Aston Street, Aston University Campus, Birmingham, B4&ET:

The LHON society have secured funding from the National Lottery, Gensight Biologics and Chiesi UK to enable the cost of attending the event to be heavily subsidised.

Car parking at Conference Aston:

This must be booked online, prior to arrival. Please visit to book and pay for your space online. You will then be sent an email permit to display in your windscreen and an entry code for the car park. Please ensure you book this prior to setting off, as we cannot guarantee availability at the venue car park on the day. The car park is a secure underground car park with a flat wheelchair accessible route to the venue.

We will be providing more information and details about the venue, transportation options and the agenda over the coming days.


Please click here to see the latest draft agenda for the day's events.

Past Events

LHON society 2019 conference

Video presentations:

Gensight Gene Therapy and Research Update - Dr Patrick Yu Wai Man

Waymap - Tim Murdoch

Mitochondrial Disease in a Nutshell - Prof Marcela Votruba

PSP Discussion

LHON - Technology Software Panel Discussion