LHON Society

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Welcome to the LHON Society

You are in the right place if you or someone close to you, is affected by Leber’s Hereditary Optic Neuropathy (LHON), or you are a medical professional interested in LHON.

The LHON Society was established to create a home for those in the British Isles affected by and with an interest in, LHON. Our aspiration is that through the LHON Society you have access to:

Please take a look around and let us know your thoughts. We are a new and growing organisation and would love you to  join us 

Videos of the 2017 LHON society conference - click here to view


The LEROS Study

This is a clinical research study to look at an approved medication, called idebenone, to learn more about its long-term safety and effectiveness for the treatment of LHON. To find out if you are eligible to take part and to find the UK study locations please click here.